7/8 - A Battle Won, Others Still to Come
Absorbing her final few drops of hydration fluid this evening, Kristine officially finished her final chemotherapy regiment. It's been almost five months since her first symptoms presented themselves on our ski vacation in Colorado. I think I speak for both of us when I say we feel completely turned around, not certain as to what exactly has just happened. While all time is warped by individual perception, the past five months for us know seems like an entire extra year went by and we barely blinked a second time.
The most difficult thing to grasp is that this is just the beginning. It's easy to get caught up in the victory and forget that the disease (although hopefully smaller and less harmful) is still there. This battle is complete, but there is no clear winner and still more battles to fight. The most imminent of which is surgical extraction. This is something that Kristine is having the hardest time dealing with emotionally. She has gone through so much in the past several months with little concrete affirmation of success. I read a great analogy that a cancer survivor had written on the topic of finishing chemotherapy. She said it's like a dog chasing a car and actually catching it, what now? To further complicate matters, Kristine's test results (CT scans and echocardiograms) show conflicting information. For Kristine (and all of us), this just creates greater uncertainty and anxiety for what's to come.
I've stood beside Kristine through this entire process and I can honestly say that I have only the faintest conception of what she has been through. After all, this isn't like a really bad cut that you can compare to a lesser one you recently had, simply projecting what it might have felt like if your cut had been 10 times as large and as painful. The emotional and physical distress independent to one another would be enough to send most of us over the edge, let alone having the two working together to compound their collective weight.
The short term physical effects of chemotherapy on Kristine are easy to report. There are some obvious, well known things such as her bald head and her significant weight loss (it's the lowest it has been since she was a teenager). But there are also the lesser known effects. Kristine has frequent hot and cold flashes and night sweats. Without eyelashes to prevent them from sticking together she has to stretch her whole face to open her eyelids. Her sense of smell has been enhanced which aggravates her nausea. She has seen a recurrence of fungus in her mouth (Thrush) causing swelling and soreness in her tongue. Her overall skin tone has yellowed and the folds of her knuckles and palms have taken on a dark brown tone. Her finger nails, like the inner ringlets of a split tree trunk, show white lines indicating the weeks of her treatment.
All of these physical manifestations are only temporary set backs and are likely to disappear in the next few weeks. The emotional struggle, however, will be something Kristine must endure until even well after any validation that the cancer is gone. The questions will continue to linger about whether the disease is truly gone or if it will come back.
For now, we are just thinking about getting Kristine through her nadir week. One day at a time.
Celebrate the successes ..no matter how big or small!!
ReplyDeleteAnother definition of Nadir that I like better ...nadir (nā'dər) The point on the celestial sphere that is directly below the observer (90 degrees below the celestial horizon). This week will be wonderful and go by fast!!
I will be thinking of you often ..
b
Hi there--
ReplyDeleteTo Ryan, who continues to find the words to share with us Kristine's experience, thank you. It's remarkable.
To Kristine, who has to endure pain both physical and emotional, there is never a day that I don't think of you. And I'm sure that I am one of many.
I know that does very little to assuage what you are feeling. But I hope in the worst moments you are able to find some small amount of peace in all the love that others have for you.
Try to enjoy these post-chemo weeks, take it minute by minute and know how much you are loved!!!!!!!!!!!!!!!!!
xoxo
Kira
Kristine, We are so happy to hear that you are finally done with 6 rounds of chemo! That is certainly worth celebrating, (maybe over some good mexican food when youe side effects cease!)
ReplyDeleteRyan, Thank you for the updates, so eloquently written! Take one day at a time and think of all bumps you've had and the progress you've made. Have faith in God's plan for you. I pray that He gives you strength and peace as you look forward to surgery. We are really proud of you!! Love, Jodi and Pat
Kristine and Ryan
ReplyDeleteI have been following your story since day one and have been truly amazed at the constant strength and determination that is portrayed in each blog entry. Kristine- I think of you often and have prayed for you and your recovery from this random, indiscrimnate and mean illness. You are inspiration to all those who are faced with an illness of such magnitude.
Ryan- thank you for doing such a wonderful job in updating everyone who cares so much and checks in on you two daily. Thank you for letting us into your lives and allowing us to try to understand what your journey has been like.
Best of luck with everything the immediate and far future holds. You WILL beat this. It may be a bumpy road but eventually things will get smooth and the day we all open our computers and check your daily blog to find the words "I BEAT THIS DISEASE" will be a wonderful day for all those who know you, love you and care about you. It will also be a wonderful day for people such as myself that know someone close to you.
Take care of yourselves and eachother.
Friend of your Family
Just writing to say we are thinking of you and glad this part of the "journey" is over. Once you are feeling better, go do something nice...just the two of you. You deserve it.
ReplyDeleteThe DeVoll Family
Hi Kristine.
ReplyDeleteI was really sorry to hear that you had become ill, and I am also really happy to read that your rounds of chemo have been completed. I hope you are feeling better and stronger and I wish the very best for you as you move forward with your recovery.
Best,
Kim Selby (formerly of Philadelphia magazine)
Stine and Ryan -
ReplyDeleteThinking of you in Chicago and so happy the final round is over. Bravo to Ryan and his awesome blog entries - thank you for helping us all to understand. Love to you both!
J.J.
i hope you are able to just spend time together enjoying.....i'm happy this part is over. i'm thinking of you daily! continue to stay strong!
ReplyDeletelove, debbie