Monday, November 19, 2007

11/19 - Sorry it's Been a While

Kristine continues to receive daily radiation treatments that will last through the middle of December. They’re fairly routine and quick, each treatment lasting only a few minutes. She lays in a long CT scan like machine with her arm and shoulder in a custom fitted mold to ensure exact repeatability of each localized treatment. A large box is lowered onto her shoulder aligning with several pinpoint tattoo marks that have been permanently inked onto Kristine’s skin, again to ensure exactness.

Radiation doesn't have many side effects especially in the location Kristine is receiving it. Her right shoulder has developed a slight redness and her skin will continue to darken in the treated area. The redness will likely recede but could last permanently. To answer a question that comes up a lot, there’s little to no risk of infertility since the radiation is not being administered anywhere near the abdomen or groin. There is a chance that her esophagus could be “burned” since the treatment is occurring so close to Kristine’s throat. If her throat were affected it could cause painful swallowing for a short time and those who experience this side effect often lose a good deal of weight because they avoid the pain that eating brings. The doctor is careful at each appointment to ask Kristine if she’s experiencing any pain from swallowing or eating. So far she is fortunate that this has not been an issue.

Kristine’s physical strength is improving all the time, but is still a long way from where it used to be. This is evident each time she pushes to climb the stairs or walk at a usual pace, as she herself forgets her current limits -- or perhaps just refuses to accept them. The little bit of hair that had grown back fell out again a few weeks after her final cycle of chemo and has been stubborn to show any sign of regeneration since. No one can really explain this other than to say that, “it can take time.”

People who see Kristine these days comment on how amazing she looks and how vibrant she is. These statements have ceased to be qualified on a relative scale of someone who, “…has been through what she’s been through” and instead are made using a normal, healthy person’s scale, the kind of scale reserved for friends without cancer. I think this observation illustrates just how well Kristine is doing.


There are many things that Kristine now avoids and probably will for some time. Things that developed a strong association to the emotional and physical stress that came with nine months of cancer therapy. The smell and taste of lemon from the candies she sucked on to mask the metallic taste of saline port injections, for example, bring back discomforting memories.

For me, blogging has come to have a similar association. As much as it has been a healthy outlet for me and a helpful tool to keep you all informed, when I sit down to write one of these postings I’m forced to confront truths that seem easier to avoid -- the reality of Kristine’s struggles and the uncertainty of what the future holds.

My hiatus from blogging for the past five weeks was not meant to be irresponsible or disrespectful in anyway, and I apologize if it seemed that way. The break was a way for me to embrace a little bit of normalcy and more importantly to focus on the one thing that matters most, Kristine. The support you have all shown to Kristine and I has been overwhelming. Your generosity and genuine concern have been extraordinary. But I also have to thank you for your patience with my inconsistent communication as Kristine and I try to make sense out of the next phase of our lives.

I do think that as we enter this new phase it’s only fitting that Kristine begin contributing her voice to the blog. So, with that, you will be hearing a little less from me and a lot more from the woman who has been a driving force and source of inspiration to me and to so many others. Kristine plans to start updating the site regularly to meet the needs of her loyal “fan base” and to continue to tell her story into its next chapter.

7 comments:

  1. Hi Ryan and Kristine, as one of your "fans", I still check the site almost daily. Please don't feel bad about not updating. This has been a wonderful gift. I'm glad to hear you are focusing on each other and trying to get back to "normal" life. I'm glad to hear radiation is more tolerable. We think of you often and you continue to be in our thoughts and prayers. Wishing you and your families a very blessed Thanksgiving!! Jodi and Pat and the kids

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  2. Have a wonderful Thanksgiveing, Kristine and Ryan. Hope you enjoy the holiday. Not having chemo, is a blessing to be thankful for. Glad to hear that all is well with you. We will continue to pray for you and keep you in our thoughts, Deb and Brent W

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  3. HI,Kristine and Ryan,you know the old saying no news is good news and we know if it wasn't,we would've heard from you before now.Ryan no apoligizes needed,you guys needed a break and some time for you,its been a long road.It is good to here how things are going. I think about you guys every day and will keep you in my thoughts and prayers.Kristine and Ryan you both have wonderful and Blessed Thanksgiving how ever you choose to spend it. LOVE you both,Always.....LATNEY (csc)

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  4. Hello Ryan, We met you briefly several years ago at a company function and were pleased to do so. You have been a God sent in the way you've kept us informed through all this. Considering the immeasurable time, uncountable minutes and hours that you have been preoccupied, you should never feel the need to apologize. Like someone else said, we knew "no news is good news". I wanted to add, that your writing skills and the way you transfer your thoughts and experiences to type are captivating. Not only for the information we're looking for, but a style that is admirable. Thank you so much for keeping us in touch !!

    Hi Kristine, How are you my friend ? I think about you and say a prayer for you daily. I'm so glad to hear the road you're on is much better than the one you traveled on the other treatment. We look forward to reading your thoughts when you feel up to writing in the blog. I miss your smile, haven't seen you in a while but sure do look forward to seeing it again soon. Speedy recovery !! Vicki sends best wishes and I look forward to that smile in the not too distant future. You're an inspiration to all of us.
    Big hugs, Bill & Vicki

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  5. Hey Guys--
    Not sure where you spent Thanksgiving, but I hope your day was filled with family and/or friends, great food and love!
    As for the blog--your ability to communicate all the details of the last year, and to do it so eloquently, is no small thing. Together, you are an amazing pair.
    My respect continues to grow for the strength and love that you share.

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  6. Hi, Kristine & Ryan,
    I'm happy to read the good news that the new treatment is going better. No apology necessary for blog delay. We are all so lucky that you took/take the time to share your story. I think of you so often. I will call soon!
    Love,
    Jill

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  7. I agree no news is good news!
    I am a HUGE Fan and just glad to hear things are going in the right direction .... Take Care

    Love

    Barbara & Mom Vale

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