Monday, April 20, 2009

Closed Doors, Open Doors

Kristine had to deal with another piece of disappointing and frustrating news this week. The rehabilitation center that she has been attending for physical and occupational therapy on Tuesdays, Thursdays and Fridays informed her that her last session will be next Friday, May 1. They explained that she's not progressing enough to qualify for insurance coverage at this point. She still has several sessions left under our coverage for this year, but the sessions will only be approved by our insurance provider if she is showing continued signs of progress. Kristine's therapists told her that if she's able to strengthen her leg and/or arm muscles during her time off there is a chance that she could come back in a few months to continue therapy.

When Kristine was first paralyzed the neurosurgeon told her that whatever movement she would regain would likely occur within the first six months. Kristine has carried this statistic around with her since her brain surgery last October (about 6 months ago). So, of course, when the news came that she was no longer progressing physically, it hit her particularly hard. For Kristine it was like the window of opportunity had passed her by and her hopes of regaining mobility and independence disappeared along with it. Kristine will still attend aqua therapy two days a week to keep in shape and continue to work toward improving her physical condition.


After last week, we felt like we were out of options in Kristine's cancer fight. While we are still exploring conventional options like surgery, the available options are nothing more than a way to buy time. However, an interesting potential lead did surface though in the last few days. A credible customer of my father's gave him some information about an Herbalist in Ohio that helped a member of her family resolve his cancer -- he is still cancer free today after several years in remission.

Needless to say we have heard a lot of these claims before and have remained very skeptical. However, we are willing to take desperate measures these days, so we gave the man a call. It so happens that he'll be about an hour and a half outside of Philadelphia next week meeting with some other individuals. He put us in contact with a local man and his wife who are helping to organize and host his visit. When we contacted the family the man told us that they were first introduced to Mark (the Herbalist) when their son was diagnosed with a terminal cancer and given 2 months to live by John's Hopkins' cancer center. Without any information from us on Kristine's condition, he added that his son had a sarcoma that had metastasized into his lung. He claimed that in just 2 months his son's scans showed that the cancer had vanished from his lungs and in a total of 8 months his son had no readable traces of cancer left.

Of course, this all sounds too good to be true and I have a difficult time believing any of it. But for the time being it's providing us with a little more hope than we had yesterday and a little more inspiration to push us forward and fight. We set up our appointment for next Tuesday. We will be sure to keep you updated with the latest.

13 comments:

  1. Wow, that's exciting news about the herbalist in Ohio!! :)
    i can't wait to hear more about him. its especially interesting (and thrilling) that he's helped another sarcoma person!

    i'll be anxiously awaiting more info on your visit w/ him and until then keep up the amazing work you are both doing and stay focused on the good news that's still out there for you.
    love,
    Kimberly
    Mill Valley, CA

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  2. i believe in this also...and i believe in kristine! miss you both terribly!

    love, jeanna

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  3. please know if the herbalist is anywhere near cleveland you have a place to stay. the room is ready for you both.

    debbie

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  4. Best of luck to you both!
    Mom and I are in Scotsdale at the Mayo Clinic just happy to have a doctor listen to us she had a surgery yesterday that should help stuff
    so believe me doctors aren't always the answer and you need to find the answers where ever they are ... Hang in there!
    Love b

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  5. Wow- I got the chills reading about the herbalist and how he healed the boy w/ sarcoma. I am sure you are skeptical, but that is a great possibility for hope. I am praying, as always....
    Love
    Leigh

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  6. Looking forward to hearing about the herbalist progression. Kristine I'm always thinking of you and Ryan. You guys are both truly amazing.

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  7. Amazing development. I've got my fingers crossed. Looking forward to hearing about your visit with Mark.
    - windy

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  8. Hey Kristine--
    It's been a long time, but you never leave my thoughts. I'm going to believe that after this new herbalist approach you can resume therapy in a few months. Remember how loved you are by so many--because all the good thoughts you receive on a daily basis have a power all their own.
    Much love,
    Kira

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  9. I know a lot of people up there and I hope they are all listening to my prays for you both. Remember you have a place to swim all summer, I'd love to help. All my love, Mom/Holly

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  10. What a coinincidence that the herbalist is going to be close to your area. I think that's a good sign. I do believe that they can do some amazing work and also give you something positive to think about. I know a long time ago I mentioned that my aunt and uncle have a vibe machine that they believe helps aide the body in the healing process. You can find info./people in your area online who also have one if you're interested in looking into it. Always, always thinking and praying for you both. Take care, Shannon H.

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  11. Good luck on Tuesday...I'll be thinking of you and waiting to hear how it goes. Love, cousin Audy

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  12. Kristine & Ryan:

    I just want you both to know that every day I think of you and the struggle you are going through. Keep fighting, I know how strong you are.

    Love Mark Karp

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