4/15 - Day 7, Cycle 2: Another Cycle Down
It's been raining all day today (Sunday) in Philadelphia, one of the more relentless Nor'easter we've seen in a while. Kristine's spirits haven't been dampened though, the toughest part of her 2nd chemotherapy cycle is behind her. She finished the last of her intravenous hydration fluids this afternoon. No more flushing her port with saline (a process that leaves a nauseating taste in her mouth) and no more being attached to an IV for hours at a time. The feeling of nausea will begin to subside and she will reclaim a fairly normal appetite.
She received high fives from her sisters and me as the last remaining drops of potassium chloride were funneled into her port. It's a small milestone but one that symbolizes the upcoming two week stage of freedom and rejuvenation before entering her next cycle. Like the last cycle she'll need to be cautious for the next two weeks. Her white blood cell counts will remain low making her susceptible to infection and illness.
On Saturday we reached another milestone when Kristine, her sisters and I headed North to Ginnie G's, a salon and day spa that specializes in wigs and hair replacement. Ginnie, the owner, showed us to the wig room down a short set of stairs. The walls were lined with shelves of styrofoam busts crowned with cranial prostheses of various colors and lengths. Ginnie asked the standard set of questions: Real or synthetic (I couldn't honestly tell the difference), match your existing hair style and color or try something new? After trying on several pieces Kristine set her mind on one. It isn't electric blue, nor bright red, nor is it fashioned after Sanjaya's pony-hawk (although these were all great suggestions). It is, however, similar in color to her existing hair but a bit longer. She chose real hair over synthetic to improve her styling options (with real hair you can cut and style the wig just like you would your own hair).
After having her wig styled, Kristine moved on to the second step. She had her head shaved. Surprisingly it wasn't as traumatic for any of us as I would have expected. Kristine handled it with amazing strength. She looks very cute with her shorn cranium, even a little bad ass (pardon the profanity). Ginnie didn't shave down to the skin, more like a buzz style cut. Having worked with a lot of cancer patients Ginnie informed us that one shouldn't cut the hair down to the scalp during treatment due to the risk of infection and irritation. It's better to shave the hair short to avoid the mess and let the rest fall out on its own.
As for pictures and voting on the new styles, you will have to wait a bit longer. Kristine's not quite ready to reveal her new hair-do. She prefers to wait until her head is completely bald to conduct the voting. I did insert a little teaser for you all -- the remnants of Kristine's lost hair. It's up for sale on EBay but I don't think we can get the same million dollar asking price that Britney Spears' did. :)
Dear Kristine,
ReplyDeleteI remember when my little Douglas used to taste his saline flush during treatments. He would hold his nose to make it better. I hope it works for you... its worth a try!
I am glad to hear that yur appetite is good during non treatment time. I attribute some of our success to Douglas good nutrition during that recovery time. Our neighbor would make him fresh homemade chicken noodle soup. We called it our miracle soup. I wish I could send some from Chicago.
The good news about treatment is that you are killing off your cancer. Try to stay strong, but when you cant, know that the power of all your friend's and family's prayers will do the work for you.
We think about you, Ryan and your family often.
Sue, Todd, Tom, Douglas and Becky Jennings (Stephanie's in-laws)
IT'S GOOD TO HEAR THINGS ARE GOING A LITTLE BETTER, SO KEEP UP THE GOOD WORK, OUR THOUGHTS AND PRAYS ARE WITH YOU AND YOUR FAMILY TOM AND MARY VASOLD
ReplyDeleteHmmmm, Kristine's appetite is returning . . . did someone say hot dogs?
ReplyDeleteCan't wait to see you guys again!
Keep on keepin' on with your bad selves.
- Windy
Kristine -
ReplyDeleteIm glad to see that you are making progress...im sure the hair looks fabulous. Hope to see you guys this summer.
Best Wishes,
Ben J.
Kristine,
ReplyDeleteGlad to hear you are in great spirits! Going through all of this while keeping your sense of humor in tact--you really are a goddess!!! I think you should also be shopping for a diamond tiara. THAT would be a fitting.
Much love,
Kira
Hi guys,
ReplyDeleteGlad to see Kristine did well with this chemo session. Can't wait to see the new style! Ryan too bad you didn't drag Dick along.... he needs help desparately!! Any ideas?? Love to you both,we think of you daily!
Dick and Jane
Kristine,
ReplyDeleteI want you to know that on behalf of Colette's friends- we love you and read your blog daily.
Ryan,
You inspire me. You are a true angel.
You both have a place to stay in Chicago this summer! I look forward to reading more great progress and knowing your spirits are high.
XOXO,
Jackie Kerns
Kristine,
ReplyDeleteWith or wihout hair , you are the most beautiful woman (person ) that I have had the privalage? to be a part of and want you to know that I (we) love you more than you will ever know. Keep up the great work and we hope to see you soon.
Love forever Mom and Dad # 2
Dear Kristine,
ReplyDeleteYou are amazing. I know that you will look beautiful without your hair and also with your new 'do.' On Valentine's Day Lauren donated 10 inches of hair to Locks of Love. If you chose blonde maybe you will have some of her hair...she would be so happy. Speaking of Lauren, she still LOVES the doll that you gave her when you visited us in Midland. Lauren lovingly named the doll, Kristine. :-)
I think of you daily and pray that you are healthy soon.
Ryan, thanks for taking such good care of Kristine and also for keeping us updated.
Love,
Jill (Martin) Boydston
Dear Kristine,
ReplyDeleteCongratulations on finishing another cycle of chemotherapy!
I want to thank you for posting these updates in such a public place. I'm a pediatric oncologist, and I mostly take care of children and young adults with sarcomas. It's not often that patients let us into their lives in such a revealing way. I'm sure that because of your blog, and others that I might find, I will be a better physician, because of the insight you guys give into what being treated for cancer is really like.
Thank you, and good luck with everything.
Keep up the good work!
David Loeb, MD
Baltimore, MD
Kristine so happy things are going along well you don't need hair you have a beautiful face and a wonderful energy but the wig sounds good .. Ryan is amazing and I am so happy he is in your life. Keep yourself well and away from germs .. it is back to the mask, right? I think of you often and want to see you soon.
ReplyDeleteLots of Love
Barbara
Kristine,
ReplyDeleteI received a e-mail from connie, I am so glad you choice of sounds is the ocean .I know it helps me, when I am
overwhelmed.you and Ryanare being sent many, many hugs!!
Much Love
Always
Aunt JUDE
XXXOOO
Kristine and Ryan--I am so happy to hear that this last cycle of Chemo is over and went as well as it did. I'm sending both of you hugs--you sure deserve them. I think of you and pray for you both every day. Many of my family members donate their hair to Locks of Love--they won't take mine--it's too old!!!!! I appreciate their efforts now more than ever. I'm so glad you were able to find something that you felt good about.
ReplyDeleteTake care of yourself and save your strength--Don't let those sisters of yours wear you out! Love, Aunt Elaine
Well, Kristine, they say no news is good news, I am hoping and praying that is the case for you. You are in our thoughts daily, hope you are getting some stregnth back and enjoying each day to the fullest... Deb and Brent
ReplyDeleteDear Ryan, I am Chrstie Ivey Miller. Kristine's sister, Colette is married to my nephew Justin Ivey. I wish to convey my compassion, empathy and sympathy to you. Reading your blogs has touched me deeply. And,of course, I am not the only one. I hope you find great comfort that you were with her to the end. A close friend of mine, Rita, nursed and cared for her husband, Jamie, so much like you did for Kristine. I lived with them during his illness to help out etc. and saw firsthand the effect it had on her. You are a good man Ryan.I have so much admiration for you. I hope you find comfort in that you gave your all to Kristine to the end. I can only imagine how beautiful and fulfilling it was for her to see the true and real love you have for her. I wish you nothing but the best life can be for you. I do not know you personally Ryan, but am all too familiar with your circumstance. I wush you love, peace and harmony. Love, Christie
ReplyDelete