Tuesday, October 21, 2008

Keeping Pace

In preparation for Kristine's transfer to a rehabilitation center, Jim (Kristine's dad) and I took a tour of one of the facilities recommended by our team of doctors. The center is within the Penn Health network and is located in the newly renovated Graduate Hospital (now called Pennsylvania Hospital at Rittenhouse). It is a brand new facility with spacious single bedrooms, private accessible bathrooms and brand new rehabilitation equipment. The staff is a mixture of those from Penn Hospital and the Hospital at the University of Penn so they bring a wealth of experience with them. The location of the center is also very convenient being within walking distance from our house. Kristine's parents, not being used to big city parking, are certainly happy about this feature.

Once Kristine is cleared for discharge in the next couple of days she will be on her way to rehab. But as is often the case lately we have more news to digest that could complicate her transition. It seams that Kristine's heart is beating irregularly, meaning that her heart is skipping beats and taking irregular pauses. As you can imagine this is pretty dangerous especially as she gets ready to exert more energy in rehabilitation. The doctors are not certain what is causing the problem. They initially believed that it could be related to the tumor that was removed from her brain or the surgery conducted to resect it. If it is directly related to the surgery Kristine would potentially need a pacemaker to keep her heart rate steady. However, as recently as this morning the doctors shifted a bit to thinking it may be a temporary symptom. For the short term she is on a medication called Theophylline (typically used for airway troubles in asthma patients but has a secondary or "off-brand" use to increase the heart rate). The MRI that Kristine has agreed to have (she has been resistant to a post surgical MRI) will give us more insight into just how serious the problem is. We are really hoping that this new development does not require surgical implementation of a pacemaker. There is a point were additional procedures become inhumane and risk sending Kristine over the edge psychologically.

Kristine's sister Stephanie flew into town yesterday evening. This should give Kristine some additional motivation to move forward. Today's goal: get her out of bed, maybe in a chair and playing a hand or two of cards.

22 comments:

  1. keep up the great work kristine!!! if you move to rittenhouse rehab, get ready for lots of visitors!!! we love you and continue to pray for your recovery. love, jeanna

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  2. Can't wait to visit you as well Kristine!
    xoxo
    debbie (philly mag)

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  3. My love to Kristine. Will continue to send love and prayers!!!
    Kira

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  4. Amazing the rehab center is in walking distance to your house :)
    We are looking forward to coming out and being part of the rehab process...sounds easier than winning at cards!!!!
    E T and C xxx
    PS Hugs and Love to Kristine and her family.

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  5. Kristine
    We are all thinking and praying for you. Keep up the hard work and stay strong! We love and miss you!
    xoxo
    Joan, Rod, Melissa and Shawna

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  6. Hi Kristine.

    My name is Michael. I am Erica's "uncle from Iowa". Until she shared her story of meeting you, I felt there was nobody as strong, persevering, loving, and unselfish as her. But God brought you into her life and subsequently into ours. For that, we have been blessed. You are a very special woman and you have infused hope, love, laughter, and purpose into Erica's life. The time has come for you to receive the benefits of that investment. Open your mind, heart and soul to the love that is flowing to you right now. All those people whom you have touched are reaching out to you and offering their strength and life-healing force. Accept this gift freely and know that we are one team! You are not alone!

    I look forward to meeting you some day and thanking you in person for the love you have brought to our family and to this planet.

    In His name,

    Michael

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  7. Kristine,

    I look forward to visiting you at the rehab hospital on 18th and Lombard - very convenient for all of your friends and family that LOVE YOU so much.

    I love your spirit and tenacity.
    Love,

    Kathy and Ruby xoxo

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  8. Dear Kristine,

    You don't know me but I feel I know you. Erica (who I lovingly call Miss Iowa) has told me so much about you and how you helped her thru one of the worst times of her life. Your bravery and wisdom were so helpful to her. I want to thank you so much for that.

    I am not a very religious person but I am a very spiritual one. Being a Mom and grandmother has taught me that God works in strange ways sometimes. My husband Tom and I will be thinking of you and praying for you and your family. You have touched many lives, even the lives of people you have never met.

    God Bless You
    Claudia and Tom Sylvester

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  9. Hi Kristine,
    My name is Tricia, a long time friend of Erica Miller. Just wanted to send a note to let you know you are in my thoughts and prayers everyday.

    Thank you for bringing joy into Erica's life. I look forward to meeting you some day!

    Tricia from Chicago

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  10. Hi Kristine and Ryan. Sounds like a place has been selected for the next step and it's great that it is close. Prayers continue as you both digest all of this information and move forward with decisions that must be made. Thanks for the update....all of us that follow your journey truly appreciate the effort that you are putting into this blog at such an emotional and physically draining time for you both. Warmly, Ann

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  11. Kristine and Ryan - I am a friend of Erica's, Ashley. I have heard so much about you and am writing to send my virtual strength and support.

    From friend-to-friend experience I can say CANCER SUCKS! And isn't it pathetic, hiding out in dark places! It has NO idea the forces it is dealing with because when two women like you, Kristine and Erica, come together - there is nothing that can stop you. I'm anxiously awaiting the day i can turn the freshly printed pages of "Something funny happened on the way to Chemo" AND brag that I personally know the authors - these two FABULOUS women!!! So - as our group of girls always says "Boobs to the Wind", Kristine!!! One rehab step at a time girl, you'll get there and we will be cheering you all the way!!!

    Love, Ashley

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  12. Kristine,
    I'm Shannon Trotter. Erica friend in Ft. Lauderdale. She has told me so many stories about you and I feel like I know you. Erica is my inspiration and you are hers. I just want you to know that we are all pulling for you, plus I think you two still have a book to write!! I've heard quite a few exerts and lived one or two with my friend. It is why I call her Buzz and she calls me Neil. I told her I'd love her to the moon and back. That makes me Neil Armstrong and her Buzz Aldron (spelling) - mainly because she didn't have any hair at the time too! We laughed during some of the worst times of that chemo night. That is what she does for everyone. Makes them smile and laugh. And I just hope that by telling you a small story that it brought a smile to you as well. Thank you so much for all you have done for my friend.
    You are in my thoughts and prayers every day.
    All my love
    Shannon Trotter

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  13. Kristine (Ryan, Jimmie, and Connie) Just a quick note to let you know we are thinking of you and love you very much. We are praying that you find the strength to keep up the fight. Love, Aunt Elaine and Uncle Roger
    PS. Uncle Roger is home from the hospital and doing better.

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  14. Hi Kristine and Ryan,
    My name is Rick and I'm a friend of Erica's. I have known her and Tim for several years and for you to make the impression you have, you must be a very special person. My thought are with you both.
    Rick from Antarctica

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  15. Hi Kristine. I'm Erica's little sister, MacKenzie. I've heard so many great things about you from Erica that I feel as though I know you. I just want to say thank you for being such an outstanding friend to my sister. I will being thinking about you and praying for you.

    MacKenzie

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  16. Hi Kristine - glad to hear that you are about to move to rehab and a new fase of your healing. Prayers continue with good thoughths to you and your family - deb and brent

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  17. Hi this is Nick, Erica's brother. I can't tell you the amount of strength you have given my sister. To be honest you made me jealous on what an awesome job you did on the fund raiser for her. It has meant a lot to all of us. This might sound wierd coming from a stanger, but I judge success by the amount of lives we touch & how deep of an impact we have on them. Without meeting you, just by knowing my sis.... I would say that you are VERY successfull.

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  18. Hi everyone,

    Thought I would share something with you-- when Kate was here the other day and we were making cards, I said I thought Aunt Tine would like one with flowers and sun and butterflies. She proceeded to draw a big circle with dots and a glass with something in it. When I asked her what it was, she said "a lemon and a glass of lemonade". What amazing insight that little five year old has and didn't even know it. Amazingly ironic, isn't it???? Love you all and am thinking of you constantly. Sending love and prayers,
    Angie and family

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  19. Hi Kristine,
    My name is Ashley. I am Erica's soon to be sister-in-law. Erica has told me so much about you and I just think it's awesome that she has such an amazing friend to help her through the tough times. What you did for her with the fund-raiser is truly inspiring. When Erica showed me the e-mail about it, it honestly brought tears to my eyes. I just want you to know that you are in my prayers and i can't wait to meet you someday!
    Ashley, Ian, & Kyler

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  20. Thinking of you each day, as are our families and neighbors who send good vibes and lots of strength your way. xoxo, Simone

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  21. Dear Kristine,

    Your being sick just makes me want to take ahold of my favorite chew toy and RIP IT TO PIECES! That sucks! I am not in agreement with that at all!

    I just want to say that I cannot WAIT for the day until you can come back to Florida and visit me! I promise I will try not to bite (hard!) on your ankles again, (sorry about that!) and I promise, that if YOU promise to stay MORE than 24 hours, and play with me this time, instead of paying all your attention to MY MOM, and pet my belly and bring Ryan to meet me, then we will be great friends FOREVER! So please, for MY sake, Kristine, get better soon! My Mom (Erica) and Dad (Tim) have been so preoccupied lately that I get NO attention and I KNOW you will give me the respect I deserve!

    OH! I almost forgot...what does Ruffus look like? Does he need a playmate? Has he tried to eat all your nuts again lately? Hee...hee..heee..Can't wait to meet him, too! I lost my playmate, MJ The (Scary Kitty) Cat this week, so I am feeling pretty lonely. Don't suppose you have any FEMALE dogs for me to get to know/sniff, do you? RRRRRRRUFF!!! :-)

    Anyway..hope you're feeling LOTS better soon, and looking forward to seeing you, sniffing you, licking you, and nipping at your ankles again SOON!

    With Lots Of Love, Affectionately and Appropriately Nicknamed By You,

    "The Two Toothed Tiger; Scruffy" XOXO

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  22. dear Kristine,
    i've been "checking in" on you via your blog thanks to Ryan and wanted to let you know that i'm thinking of you and sending light, love and healing energy your way every single day! Ryan you are an inspiration to say the least, thank you for keeping us updated and for being such an exceptional man!

    Kristine i look forward to speaking with you live soon but until then please remember that you are capable of ANYTHING!!! you are one of the strongest, most willful and loving people i know. please call on the love all around you whenever you need it. you are amazing!

    sending tons of love,
    Kimberly (Mill Valley)

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